In many people with fibromyalgia, their entire sensory system is amplified, making them highly sensitive to touch and other stimuli: something as simple as a clothing tag on the back of the neck can be unbearable, and even a hug from a loved one can trigger pain.
Is there a fibromyalgia helpline?
Fibromyalgia Action UK is a charity that offers information and support to people with fibromyalgia. If you have any questions about fibromyalgia, call the charity’s helpline on 0300 999 3333.
Is there a fibromyalgia website?
Welcome to the National Fibromyalgia Association’s website!
How do you talk to someone with fibromyalgia?
There are many things that someone can do to support a family or friend suffering with Fibromyalgia:
Help them find a daily routine.
Support them to keep up with daily activities.
Remind them it’s ok to stop if they don’t feel up to something.
Provide them with emotional support.
What should you not say if you have fibromyalgia?
Top 10 Things NOT to Say to a Fibromyalgia Patient
We all get more aches and pains as we get older.
I think I have that, too — I’m always tired.
Maybe you need a job to take your mind off the pain.
My doctor says fibromyalgia isn’t a real disease.
If you got more sleep, you’d feel better.
What is the color for fibromyalgia?
To help raise awareness during this time, you can wear purple clothes or a purple ribbon to initiate a conversation about fibromyalgia, or even change your social media profile pictures to a purple ribbon.
What should you not do if you have fibromyalgia?
Other foods and ingredients that may cause symptoms for some people include, but are not limited to:
Fruits and vegetables in the nightshade family, such as tomatoes, white potatoes, green peppers, and goji berries.
Are there support groups for people with fibromyalgia?
Remember, you’re not alone, in our support group people chat about their journey with fibromyalgia, people just like you, affected in the same way as you, dealing with the same problems and issues as you. Together we provide hope, information, support and friendship to people affected by fibromyalgia and sufferers of chronic pain.
Where can I Share my Experiences with fibromyalgia?
Looking for a place to share your frustrations and get tips from others coping with the same condition? Share your experiences with fibromyalgia and learn from others in WebMD’s Message Board: Fibromyalgia Support Group
Are there forums for CFS and fibromyalgia?
This forum is for your chronic pain related questions and symptoms for CFS and fibromyalgia. If you suffer from chronic fatigue syndrome or have fatigue associated to your fibromyalgia post here. Has anyone tried BCAAs for EXTREME muscle fatigue?
Who is on the griddle for fibromyalgia?
Hi to all. I am a bit frustrated because I went to rheumatologist for fatigue, shortness of breath, overall unwell… READ MORE Who else is on the griddle?The fan venting out our attic was dying, so now the house is… well, let’s just say I… READ MORE